Data Protection Policy

1. Introduction

Anaphylaxis Campaign is committed to conducting its business in accordance with all applicable Data Protection laws and regulations and in line with the highest standards of ethical conduct. This policy explains the expected behaviours of Anaphylaxis Campaign employees and Third Parties in relation to the collection, use, retention, transfer, disclosure and destruction of any Personal Data belonging to our contacts (i.e. the Data Subject).

Personal Data is any information (including opinions and intentions) which relates to an identified or identifiable natural person. Personal Data is subject to certain legal safeguards and other regulations, which impose restrictions on how organisations may process Personal Data. An organisation that handles Personal Data and makes decisions about its use is known as a Data Controller. Anaphylaxis Campaign, as a Data Controller, is responsible for ensuring compliance with the Data Protection requirements outlined in this policy. Non-compliance may expose Anaphylaxis Campaign to complaints, regulatory action, fines and/or reputational damage.

Anaphylaxis Campaign’s leadership is fully committed to ensuring continued and effective implementation of this policy and expects all Anaphylaxis Campaign employees, volunteers and Third Parties to share in this commitment. Any breach of this policy will be taken seriously and may result in disciplinary action or business sanction.

2. Scope

This policy applies to all Anaphylaxis Campaign activities where a Data Subject’s Personal Data is processed:

• In the context of the business activities of the Anaphylaxis Campaign.
• For the provision or offer of goods or services to individuals (including those provided or offered free-of-charge) by the Anaphylaxis Campaign.
• To actively monitor the behaviour of individuals:
  • Monitoring the behaviour of individuals includes using data processing techniques such as persistent web browser cookies or dynamic IP address tracking to profile an individual with a view to:
    • Taking a decision about them.
    • Analysing or predicting their personal preferences, behaviours and attitudes.

This policy applies to all processing of Personal Data in electronic form (including electronic mail and documents created with word processing software) or where it is held in manual files that are structured in a way that allows ready access to information about individuals.

This policy has been designed to establish a GDPR baseline standard for the processing and protection of Personal Data by the Anaphylaxis Campaign. Where national law imposes a requirement which is stricter than imposed by this policy, the requirements in national law must be followed.

3. Definitions

Employee – An individual who works part-time or full-time for Anaphylaxis Campaign under a contract of employment, whether oral or written, express or implied, and has recognised rights and duties. Includes temporary employees and independent contractors.

Volunteer – An individual who works part-time or full-time for Anaphylaxis Campaign under a volunteer agreement, whether oral or written, express or implied, and has recognised rights and duties.

Third Party – An external organisation with which Anaphylaxis Campaign conducts business and is also authorised to, under the direct authority of Anaphylaxis Campaign, Process the Personal Data of Anaphylaxis Campaign contacts.

Personal Data – Any information (including opinions and intentions) which relates to an identified or Identifiable Natural Person.

Contact – Any past, current or prospective Anaphylaxis Campaign customer.

Identifiable Natural Person – Anyone who can be identified, directly or indirectly, in particular by reference to an identifier such as a name, an identification number, location data, an online identifier, or one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person.

Data Controller – A natural or legal person, Public Authority, Agency or other body which, alone or jointly with others, determines the purposes and means of the Processing of Personal Data.

Data Subject – The identified or Identifiable Natural Person to which the data refers.

Process, Processed, Processing – Any operation or set of operations performed on Personal Data or on sets of Personal Data, whether by automated means. Operations performed may include collection, recording, organisation, structuring, storage, adaptation or alteration, retrieval, consultation, use, disclosure by transmission, dissemination or otherwise making available, alignment or combination, restriction, erasure or destruction.

Data Protection – The process of safeguarding Personal Data from unauthorised or unlawful disclosure, access, alteration, Processing, transfer or destruction.

Data Protection Authority – An Independent Public Authority responsible for monitoring the application of the relevant Data Protection regulation set forth in national law.

Data Processors – A natural or legal person, Public Authority, Agency or other body which Processes Personal Data on behalf of a Data Controller.

Consent – Any freely given, specific, informed and unambiguous indication of the Data Subject’s wishes by which he or she, by a statement or by a clear affirmative action, signifies agreement to the Processing of Personal Data relating to him or her.

Special Categories of Data – Personal Data pertaining to or revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, trade-union membership; data concerning health or sex life and sexual orientation; genetic data or biometric data.

Profiling – Any form of automated processing of Personal Data where Personal Data is used to evaluate specific or general characteristics relating to an Identifiable Natural Person. In particular to analyse or predict certain aspects concerning that natural person’s performance at work, economic situations, health, personal preferences, interests, reliability, behaviour, location or movement.

Personal Data Breach – A breach of security leading to the accidental or unlawful destruction, loss, alteration, unauthorised disclosure of, or access to, Personal Data transmitted, stored or otherwise Processed.

Encryption –  The process of converting information or data into code, to prevent unauthorised access.

Pseudonymisation – Data amended in such a way that no individuals can be identified from the data (whether directly or indirectly) without a “key” that allows the data to be re-identified.

Anonymisation – Data amended in such a way that no individuals can be identified from the data (whether directly or indirectly) by any means or by any person.

4.1.1 Data Protection Officer

The Data Protection Officer for the Anaphylaxis Campaign is our Business Manager.   The Data Protection Officer reports to Anaphylaxis Campaign’s Chief Executive who has direct access to the Anaphylaxis Campaign Board of Trustees. The Data Protection Officer duties include:

• Informing and advising Anaphylaxis Campaign and its employees who carry out processing pursuant to Data Protection regulations, national law or Union based Data Protection provisions;
• Ensuring the alignment of this policy with Data Protection regulations, national law or Union based Data Protection provisions;
• Providing guidance with regards to carrying out Data Protection Impact Assessments (DPIAs);
• Acting as a point of contact for and cooperating with Data Protection Authorities (DPAs);
• Determining the need for notifications to one or more DPAs as a result of Anaphylaxis Campaign’s current or intended Personal Data processing activities;
• Making and keeping current notifications to one or more DPAs as a result of Anaphylaxis Campaign’s current or intended Personal Data processing activities;
• The establishment and operation of a system providing prompt and appropriate responses to Data Subject requests;
• Informing senior managers, employees, and Trustees of the Anaphylaxis Campaign of any potential corporate, civil and criminal penalties which may be levied against the Anaphylaxis Campaign and/or its employees for violation of applicable Data Protection laws.
• Ensuring establishment of procedures and standard contractual provisions for obtaining compliance with this Policy by any Third Party who:
  • provides Personal Data to the Anaphylaxis Campaign
  • receives Personal Data from the Anaphylaxis Campaign
  • has access to Personal Data collected or processed by the Anaphylaxis Campaign.

4.1.2 Policy Dissemination & Enforcement

The management of Anaphylaxis Campaign must ensure that all Anaphylaxis Campaign employees and volunteers are responsible for the processing of Personal Data are aware of and comply with the contents of this policy.

In addition, the Anaphylaxis Campaign will make sure all Third Parties engaged to Process Personal Data on their behalf (i.e. their Data Processors) are aware of and comply with the contents of this policy. Assurance of such compliance must be obtained from all Third Parties, whether companies or individuals, prior to granting them access to Personal Data controlled by Anaphylaxis Campaign.

4.1.3 Data Protection by Design

To ensure that all Data Protection requirements are identified and addressed when designing new systems or using new technology, a Data Protection Impact Assessment (DPIA) is conducted, by the Data Protection Officer. The subsequent findings of the DPIA must then be submitted to the Chief Executive for review and approval.

4.1.4 Compliance Monitoring

To confirm that an adequate level of compliance is being achieved by the Anaphylaxis Campaign in relation to this policy, the Data Protection Officer will carry out an annual Data Protection compliance audit.  The audit will, as a minimum, assess:

• Compliance with Policy in relation to the protection of Personal Data, including:
  • The assignment of responsibilities.
  • Raising awareness.
  • Training of Employees.
  • GDPR Data Protection Policy
• The effectiveness of Data Protection related operational practices, including:
  • Data Subject rights.
  • Personal Data transfers.
  • Personal Data incident management.
  • Personal Data complaints handling.
• The level of understanding of Data Protection policies and Privacy Notices.
• The currency of Data Protection policies and Privacy Notices.
• The accuracy of Personal Data being stored.
• The conformity of Data Processor activities.
• The adequacy of procedures for redressing poor compliance and Personal Data Breaches.

The Data Protection Officer, in cooperation with senior managers of the Anaphylaxis Campaign will devise a plan with a schedule for correcting any identified deficiencies within a defined and reasonable time frame. Any major deficiencies identified will be reported to and monitored by the Anaphylaxis Campaign Chief Executive.

4.2 Data Protection Principles

The Anaphylaxis Campaign has adopted the following principles to govern its collection, use, retention, transfer, disclosure and destruction of Personal Data:

• Principle 1: Lawfulness, Fairness and Transparency

Personal Data shall be processed lawfully, fairly and in a transparent manner in relation to the Data Subject. This means that the Anaphylaxis Campaign must:

• tell the Data Subject what processing will occur (transparency),
• the Processing must match the description given to the Data Subject (fairness), and
• it must be for one of the purposes specified in the applicable Data Protection regulation (lawfulness).

 

• Principle 2: Purpose Limitation

Personal Data shall be collected for specified, explicit and legitimate purposes and not further Processed in a manner that is incompatible with those purposes. This means that the Anaphylaxis Campaign must specify exactly what the Personal Data collected will be used for and limit the Processing of that Personal Data to only what is necessary to meet the specified purpose.

• Principle 3: Data Minimisation

Personal Data shall be adequate, relevant and limited to what is necessary in relation to the purposes for which they are Processed. This means that the Anaphylaxis Campaign must not store any Personal Data beyond what is strictly required.

• Principle 4: Accuracy

Personal Data shall be accurate and, kept up to date. This means that the Anaphylaxis Campaign must have in place processes for identifying and addressing out-of-date, incorrect and redundant Personal Data.

• Principle 5: Storage Limitation

Personal Data shall be kept in a form which permits identification of Data Subjects for no longer than is necessary for the purposes for which the Personal Data is Processed. This means that the Anaphylaxis Campaign must, wherever possible, store Personal Data in a way that limits or prevents identification of the Data Subject.

• Principle 6: Integrity & Confidentiality

Personal Data shall be Processed in a manner that ensures appropriate security of the Personal Data, including protection against unauthorised or unlawful Processing, and against accidental loss, destruction or damage. The Anaphylaxis Campaign must use appropriate technical and organisational measures to ensure the integrity and confidentiality of Personal Data is maintained at all times.

• Principle 7: Accountability

The Data Controller shall be responsible for and be able to demonstrate compliance. This means that the Anaphylaxis Campaign must demonstrate that the six Data Protection Principles (outlined above) are met for all Personal Data for which it is responsible.

4.3 Data Collection

4.3.1 Data Sources

Personal Data should be collected only from the Data Subject unless one of the following apply:

• The nature of the business purpose necessitates collection of the Personal Data from other persons or bodies.
• The collection must be carried out under emergency circumstances in order to protect the vital interests of the Data Subject or to prevent serious loss or injury to another person.

If Personal Data is collected from someone other than the Data Subject, the Data Subject must be informed of the collection unless one of the following apply:

• The Data Subject has received the required information by other means.
• The information must remain confidential due to a professional secrecy obligation
• A national law expressly provides for the collection, processing or transfer of the Personal Data.

Where it has been determined that notification to a Data Subject is required, notification should occur promptly, but in no case later than:

• One calendar month from the first collection or recording of Personal Data
• At the time of first communication if used for communication with the Data Subject
• At the time of disclosure if disclosed to another recipient

4.3.2 Data Subject Consent

The Anaphylaxis Campaign will obtain Personal Data only by lawful and fair means and, where appropriate with the knowledge and Consent of the individual concerned. Where a need exists to request and receive the Consent of an individual prior to the collection, use or disclosure of their Personal Data, the Anaphylaxis Campaign is committed to seeking such Consent.

The Data Protection Officer and senior management shall establish a system for obtaining and documenting Data Subject Consent for the collection, processing, and/or transfer of their Personal Data. The system must include provisions for:

• Determining what disclosures should be made in order to obtain valid Consent.
• Ensuring the request for consent is presented in a manner which is clearly distinguishable from any other matters, is made in an intelligible and easily accessible form, and uses clear and plain language.
• Ensuring the Consent is freely given (i.e. is not based on a contract that is conditional to the processing of Personal Data that is unnecessary for the performance of that contract).
• Documenting the date, method and content of the disclosures made, as well as the validity, scope, and volition of the Consents given.
• Providing a simple method for a Data Subject to withdraw their Consent at any time.

4.3.3 Data Subject Notification

The Anaphylaxis Campaign will, when required by applicable law, contract, or where it considers that it is reasonably appropriate to do so, provide Data Subjects with information as to the purpose of the processing of their Personal Data.

When the Data Subject is asked to give Consent to the processing of Personal Data and when any Personal Data is collected from the Data Subject, all appropriate disclosures will be made, in a manner that draws attention to them, unless one of the following apply:

• The Data Subject already has the information
• A legal exemption applies to the requirements for disclosure and/or Consent.

The disclosures may be given orally, electronically or in writing. If given orally, the person making the disclosures should use a suitable script or form approved in advance by the Data Protection Officer. The associated receipt or form should be retained, along with a record of the facts, date, content, and method of disclosure.

4.3.4 External Privacy Notices

Each external website provided by the Anaphylaxis Campaign will include an online ‘Privacy Notice’ and an online ‘Cookie Notice’ fulfilling the requirements of applicable law. Refer to Anaphylaxis Campaign’s ‘Privacy Notice’ and Cookie Policy for guidance. All Privacy and Cookie Notices will be approved by the Data Protection Officer prior to publication on any Anaphylaxis Campaign external website.

4.4 Data Use

4.4.1 Data Processing

Anaphylaxis Campaign uses the Personal Data of its Contacts for the following broad purposes:

• The general running and business administration of the Anaphylaxis Campaign.
• To provide services to Anaphylaxis Campaign customers.
• The ongoing administration and management of customer services.
• To support the charitable aims and activities of the Anaphylaxis Campaign
• To support third party research into anaphylaxis

The use of a Contact’s information should always be considered from their perspective and whether the use will be within their expectations or if they are likely to object. For example, it would clearly be within a Contact’s expectations that their details will be used by the Anaphylaxis Campaign to respond to a Contact request for information about the products and services on offer. However, it will not be within their reasonable expectations that Anaphylaxis Campaign would then provide their details to Third Parties for marketing purposes.

The Anaphylaxis Campaign will process Personal Data in accordance with all applicable laws and applicable contractual obligations. More specifically, Anaphylaxis Campaign will not process Personal Data unless at least one of the following requirements are met:

• The Data Subject has given Consent to the Processing of their Personal Data for one or more specific purposes.
• Processing is necessary for the performance of a contract to which the Data Subject is party or in order to take steps at the request of the Data Subject prior to entering into a contract.
• Processing is necessary for compliance with a legal obligation to which the Data Controller is subject.
• Processing is necessary in order to protect the vital interests of the Data Subject or of another natural person.
• Processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the Data Controller.
• Processing is necessary for the purposes of the legitimate interests pursued by the Data Controller or by a Third Party (except where such interests are overridden by the interests or fundamental rights and freedoms of the Data Subject, in particular where the Data Subject is a child).

There are some circumstances in which Personal Data may be further processed for purposes that go beyond the original purpose for which the Personal Data was collected. When deciding as to the compatibility of the new reason for Processing, guidance and approval must be obtained from the Data Protection Officer before any such Processing may commence.

In any circumstance where Consent has not been gained for the specific processing in question, Anaphylaxis Campaign will address the following additional conditions to determine the fairness and transparency of any Processing beyond the original purpose for which the Personal Data was collected:

• Any link between the purpose for which the Personal Data was collected and the reasons for intended further processing.
• The context in which the Personal Data has been collected, in particular regarding the relationship between Data Subject and the Data Controller.
• The nature of the Personal Data, in particular whether Special Categories of Data are being processed, or whether Personal Data related to criminal convictions and offences are being processed.
• The possible consequences of the intended further processing for the Data Subject.
• The existence of appropriate safeguards pertaining to further processing, which may include Encryption, Anonymisation or Pseudonymisation.

4.4.2 Special Categories of Data

Anaphylaxis Campaign will only Process Special Categories of Data (also known as sensitive data) where the Data Subject expressly consents to such Processing or where one of the following conditions apply:

• The Processing relates to Personal Data which has already been made public by the Data Subject.
• The Processing is necessary for the establishment, exercise or defence of legal claims.
• The Processing is specifically authorised or required by law.
• The Processing is necessary to protect the vital interests of the Data Subject or of another natural person where the Data Subject is physically or legally incapable of giving consent.
• Further conditions, including limitations, based upon national law related to the Processing of genetic data, biometric data or data concerning health.

Where Special Categories of Data are being Processed, Anaphylaxis Campaign will adopt additional protection measures.

4.4.3 Children’s Data

Children need particular protection when we are collecting and processing their personal data because they may be less aware of the risks involved. Some of the services we offer are aimed specifically at families who have children with severe allergies. To deliver these services safely it is necessary for us to collect personal data and ‘sensitive personal data’ or ‘special categories of data’ and store it on our database.

The age proposed in the Data Protection Bill for relying on consent as our lawful basis for processing personal data when offering an online service directly to a child is age 13. Before we collect data from anyone aged under 18 we always ask them to directly obtain the permission of a parent or guardian and we do not knowingly contact children aged 12 or under with targeted marketing communications.

Should the Anaphylaxis Campaign foresee a business need for obtaining parental consent for information society services offered directly to a child, guidance and approval must be obtained from the Data Protection Officer before any Processing of a child’s Personal Data may commence. We manage the information we collect in a way which is appropriate to the age of the child and ensure any communications or advertising likely to be viewed by children are age appropriate.

4.4.4 Data Quality

The Anaphylaxis Campaign will adopt all necessary measures to ensure that the Personal Data it collects, and processes is complete and accurate in the first instance and is updated to reflect the current situation of the Data Subject.

The measures adopted by Anaphylaxis Campaign to ensure data quality include:

• Correcting Personal Data known to be incorrect, inaccurate, incomplete, ambiguous, misleading or outdated, even if the Data Subject does not request rectification.
• Keeping Personal Data only for the period necessary to satisfy the permitted uses or applicable statutory retention period.
• The removal of Personal Data if in violation of any of the Data Protection principles or if the Personal Data is no longer required.
• Restriction, rather than deletion of Personal Data, insofar as:
  • a law prohibits erasure.
  • erasure would impair legitimate interests of the Data Subject.
  • the Data Subject disputes that their Personal Data is correct, and it cannot be clearly ascertained whether their information is correct or incorrect.

4.4.5 Profiling & Automated Decision-Making

Under GDPR profiling is defined as “any form of automated processing of personal data consisting of the use of personal data to evaluate certain personal aspects relating to a natural person, in particular to analyse or predict aspects concerning that natural person’s performance at work, economic situation, health, personal preferences, interests, reliability, behaviour, location or movements.”

Data subjects have the right not to be subject to a decision based solely on automated processing, including profiling, which produces legal effects and contains no human involvement in the decision-making process. The Anaphylaxis Campaign does not undertake this type of processing.

To ensure that we do not make inappropriate requests, the Anaphylaxis Campaign do engage in profiling and automated decision-making to assess the ability and willingness of data subjects to engage with our products and services, help plan our activities and determine if we should contact them with certain communications. This research may include collecting and storing data relating to you that is in the public domain as well as data that has been directly provided by the data subject. We disclose that we undertake this activity to data subjects in our Privacy Notice.

4.4.6 Digital Marketing

As a general rule the Anaphylaxis Campaign will not send promotional or direct marketing material to an Anaphylaxis Campaign Contact through digital channels such as mobile phones, email and the Internet, without first obtaining their Consent.

Where Personal Data processing is approved for digital marketing purposes, the Data Subject must be informed at the point of first contact that they have the right to object, at any stage, to having their data processed for such purposes. If the Data Subject puts forward an objection, digital marketing related Processing of their Personal Data must cease immediately, and their details should be kept on a suppression list with a record of their opt-out decision, rather than being completely deleted.

It should be noted that where digital marketing is carried out in a ‘business to business’ context, there is no legal requirement to obtain an indication of Consent to carry out digital marketing to individuals provided that they are given the opportunity to opt-out.

4.5 Data Retention

To ensure fair Processing, Personal Data will not be retained by the Anaphylaxis Campaign for longer than necessary in relation to the purposes for which it was originally collected, or for which it was further processed.

The length of time for which the Anaphylaxis Campaign needs to retain Personal Data is set out in the Anaphylaxis Campaign ‘Data Retention Schedule’. This considers the legal and contractual requirements, both minimum and maximum, that influence the retention periods set forth in the schedule. All Personal Data should be deleted or destroyed as soon as possible where it has been confirmed that there is no longer a need to retain it.

4.6 Data Protection

The Anaphylaxis Campaign will adopt physical, technical, and organisational measures to ensure the security of Personal Data. This includes the prevention of loss or damage, unauthorised alteration, access or Processing, and other risks to which it may be exposed by virtue of human action or the physical or natural environment.

. A summary of the Personal Data related security measures is provided below:

• Preventing unauthorised persons from gaining access to data processing systems in which Personal Data are Processed.
• Preventing persons entitled to use a data processing system from accessing Personal Data beyond their needs and authorisations.
• Ensuring that Personal Data in the course of electronic transmission during transport cannot be read, copied, modified or removed without authorisation.
• Ensuring that access logs are in place to establish whether, and by whom, the Personal Data was entered into, modified on or removed from a data processing system.
• Ensuring that in the case where Processing is carried out by a Data Processor, the data can be Processed only in accordance with the instructions of the Data Controller.
• Ensuring that Personal Data is protected against undesired destruction or loss.
• Ensuring that Personal Data collected for different purposes can and is processed separately.
• Ensuring that Personal Data is not kept longer than necessary.

4.7 Data Subject Requests

The Data Protection Officer will establish a system to enable and facilitate the exercise of Data Subject rights related to:

• Information access.
• Objection to processing.
• Objection to automated decision-making and profiling.
• Restriction of processing.
• Data portability.
• Data rectification.
• Data erasure.

If an individual makes a request relating to any of the rights listed above, the Anaphylaxis Campaign will consider each such request in accordance with all applicable Data Protection laws and regulations. No administration fee will be charged for considering and/or complying with such a request unless the request is deemed to be unnecessary or excessive in nature.

Data Subjects are entitled to obtain, based upon a request made in writing to the Data Protection Officer and upon successful verification of their identity, the following information about their own Personal Data:

• The purposes of the collection, processing, use and storage of their Personal Data.
• The source(s) of the Personal Data, if it was not obtained from the Data Subject;
• The categories of Personal Data stored for the Data Subject.
• The recipients or categories of recipients to whom the Personal Data has been or may be transmitted, along with the location of those recipients.
• The envisaged period of storage for the Personal Data or the rationale for determining the storage period.
• The use of any automated decision-making, including Profiling.
• The right of the Data subject to:
  • object to Processing of their Personal Data.
  • lodge a complaint with the Data Protection Authority.
  • request rectification or erasure of their Personal Data.
  • request restriction of Processing of their Personal Data.

All requests received for access to or rectification of Personal Data must be directed to the Data Protection Officer, who will log each request as it is received. A response to each request will be provided within 40 days of the receipt of the written request from the Data Subject. Appropriate verification must confirm that the requestor is the Data Subject or their authorised legal representative. Data Subjects shall have the right to require Anaphylaxis Campaign to correct or supplement erroneous, misleading, outdated, or incomplete Personal Data.

If the Anaphylaxis Campaign cannot respond fully to the request within 40 days, the Data Protection Officer shall nevertheless provide the following information to the Data Subject, or their authorised legal representative within the specified time:

• An acknowledgement of receipt of the request.
• Any information located to date.
• Details of any requested information or modifications which will not be provided to the Data Subject, the reason(s) for the refusal, and any procedures available for appealing the decision.
• An estimated date by which any remaining responses will be provided.
• An estimate of any costs to be paid by the Data Subject (e.g. where the request is excessive in nature).
• The name and contact information of the Anaphylaxis Campaign individual who the Data Subject should contact for follow up.

It should be noted that situations may arise where providing the information requested by a Data Subject would disclose Personal Data about another individual. In such cases, information must be redacted or withheld as may be necessary or appropriate to protect that person’s rights.

Detailed guidance for dealing with requests from Data Subjects can be found in the Anaphylaxis Campaign ‘Data Subject Request Handling Procedures’ document.

4.8 Law Enforcement Requests & Disclosures

In certain circumstances, it is permitted that Personal Data be shared without the knowledge or Consent of a Data Subject. This is the case where the disclosure of the Personal Data is necessary for any of the following purposes:

• The prevention or detection of crime.
• The apprehension or prosecution of offenders.
• The assessment or collection of a tax or duty.
• By the order of a court or by any rule of law.

If the Anaphylaxis Campaign processes Personal Data for one of these purposes, then it may apply an exception to the processing rules outlined in this policy but only to the extent that not doing so would be likely to prejudice the case in question.

4.9 Data Protection Training

All Anaphylaxis Campaign Employees that have access to Personal Data will have their responsibilities under this policy outlined to them as part of their staff induction training. The Data Protection Officer will provide regular Data Protection training and procedural guidance for their staff.

The training and procedural guidance set forth will consist of, at a minimum, the following elements:

• The Data Protection Principles set forth in Section 4.2 above.
• Each employee’s duty to use and permit the use of Personal Data only by authorised persons and for authorised purposes.
• The need for, and proper use of, the forms and procedures adopted to implement this policy.
• The correct use of passwords, security tokens and other access mechanisms.
• The importance of limiting access to Personal Data, such as by using password protected screen savers and logging out when systems are not being attended by an authorised person.
• Securely storing manual files, print outs and electronic storage media.
• The need to obtain appropriate authorisation and utilise appropriate safeguards for all transfers of Personal Data outside of the internal network and physical office premises.
• Proper disposal of Personal Data by using secure shredding facilities.
• Any special risks associated with particular departmental activities or duties.

4.10 Data Transfers

The Anaphylaxis Campaign may transfer Personal Data to Third-Party recipients located in another country where that country is recognised as having an adequate level of legal protection for the rights and freedoms of the relevant Data Subjects.

The Anaphylaxis Campaign may only transfer Personal Data where one of the transfer scenarios list below applies:

• The Data Subject has given Consent to the proposed transfer.
• The transfer is necessary for the performance of a contract with the Data Subject.
• The transfer is necessary for the implementation of pre-contractual measures taken in response to the Data Subject’s request.
• The transfer is necessary for the conclusion or performance of a contract concluded with a Third Party in the interest of the Data Subject.
• The transfer is legally required on important public interest grounds.
• The transfer is necessary for the establishment, exercise or defence of legal claims.
• The transfer is necessary in order to protect the vital interests of the Data Subject.

4.10.2 Transfers to Third Parties

The Anaphylaxis Campaign will only transfer Personal Data to, or allow access by, Third Parties when it is assured that the information will be Processed legitimately and protected appropriately by the recipient. Where Third Party Processing takes place, the Anaphylaxis Campaign will first identify if, under applicable law, the Third Party is considered a Data Controller, or a Data Processor of the Personal Data being transferred.

Where the Third Party is deemed to be a Data Controller, the Anaphylaxis Campaign will enter into, in cooperation with the Data Protection Officer, an appropriate agreement with the Controller to clarify each party’s responsibilities in respect to the Personal Data transferred.

Where the Third Party is deemed to be a Data Processor, the Anaphylaxis Campaign will enter into, in cooperation with the Data Protection Officer, an adequate processing agreement with the Data Processor. The agreement must require the Data Processor to protect the Personal Data from further disclosure and to only Process Personal Data in compliance with Anaphylaxis Campaign instructions. In addition, the agreement will require the Data Processor to implement appropriate technical and organisational measures to protect the Personal Data as well as procedures for providing notification of Personal Data Breaches. The Anaphylaxis Campaign has a ‘Third Party Processing Agreement’ document that should be used as a baseline template.

When the Anaphylaxis Campaign is outsourcing services to a Third Party (including Cloud Computing services), they will identify whether the Third Party will process Personal Data on its behalf and whether the outsourcing will entail any Third Country transfers of Personal Data. In either case, it will make sure to include, in cooperation with the Data Protection Officer, adequate provisions in the outsourcing agreement for such processing and Third Country transfers.

The Data Protection Officer shall conduct regular audits of processing of Personal Data performed by Third Parties, especially in respect of technical and organisational measures they have in place. Any major deficiencies identified will be reported to and monitored by the Anaphylaxis Campaign senior management team.

4.11 Complaints Handling

Data Subjects with a complaint about the processing of their Personal Data, should put forward the matter in writing to the Data Protection Officer. An investigation of the complaint will be carried out to the extent that is appropriate based on the merits of the specific case. The Data Protection Officer will inform the Data Subject of the progress and the outcome of the complaint within a reasonable period. If the issue cannot be resolved through consultation between the Data Subject and the Data Protection Officer, then the Data Subject may, at their option, seek redress through mediation, binding arbitration, litigation, or via complaint to the Data Protection Authority within the applicable jurisdiction.

4.12 Breach Reporting

Any individual who suspects that a Personal Data Breach has occurred due to the theft or exposure of Personal Data must immediately notify the Data Protection Officer providing a description of what occurred. Notification of the incident can be made by e-mailing privacy@anaphylaxis.org.uk, or by calling 01252 546100.

The Data Protection Officer will investigate all reported incidents to confirm whether or not a Personal Data Breach has occurred. If a Personal Data Breach is confirmed, the Data Protection Officer will follow the relevant authorised procedure based on the criticality and quantity of the Personal Data involved. For severe Personal Data Breaches, the Anaphylaxis Campaign Chief Executive will initiate and chair an emergency response team to coordinate and manage the Personal Data Breach response.

5. Policy Maintenance

All inquiries about this policy, including requests for exceptions or changes should be directed to the Data Protection Officer via e-mailing privacy@anaphylaxis.org.uk.

5.1 Publication

This policy shall be available to all Anaphylaxis Campaign employees, Trustees and volunteers at induction.

5.2 Revisions

The Data Protection Officer is responsible for the maintenance and accuracy of this policy. Notice of significant revisions shall be provided to Anaphylaxis Campaign employees by the Data Protection Officer.

6. Related Documents

Listed below are documents that relate to and are referenced by this policy.

• Privacy Notice & Cookies Policy
• Information Security Policy (in draft)
• Data Subject Request Handling Procedure (in draft)
• Data Retention Policy (in draft)
• Standard Data Processing Agreement (in draft)

 

Appendix A – Information Notification to Data Subjects

The table below outlines the various information elements that must be provided by the Data Controller to the Data Subject (provided through our privacy policy) depending upon whether or not Consent has not been obtained from the Data Subject.

Information Requiring Notification	With Consent	Without Consent
The contact details of the Data Controller.	YES	YES
The original source of the Personal Data, and if applicable, whether it came from a publicly accessible source		YES
The contact details of the Data Protection Officer	YES	YES
The purpose(s) and legal basis for Processing the Personal Data.	YES	YES
The categories of Personal Data concerned.	YES	YES
The recipients or categories of recipients of the Personal Data.	YES	YES
Where the Data Controller intends to further Process the Personal Data for a purpose other than that for which the Personal Data was originally collected, the Data Controller shall provide the Data Subject, prior to that further Processing, with information on that other purpose.	YES	YES
Where the Data Controller intends to transfer Personal Data to a recipient in a Third Country, notification of that intention and details regarding adequacy decisions taken in relation to the Third Country must be provided.	YES	YES
The period for which the Personal Data will be stored (Data retention schedule)	YES	YES
Where applicable, the legitimate interests pursued by the Data Controller or by a Third Party	YES	YES
The existence of Data Subject rights allowing them to request from the Data Controller- information access, objection to Processing, objection to automated decision-making and profiling, restriction of Processing, data portability, data rectification and data erasure.	YES	YES
Where Processing is based on Consent, the existence of the right to withdraw Consent at any time, without affecting the lawfulness of Processing based on Consent before its withdrawal.	YES
The right to lodge a complaint with a Data Protection Authority (The ICO)	YES	YES
The existence of automated decision-making (including Profiling) along with meaningful information about the logic involved and the significance of any envisaged consequences of such Processing for the Data Subject.	YES	YES
Whether the provision of Personal Data is a statutory or contractual requirement, a requirement necessary to enter into a contract, as well as whether the Data Subject is obliged to provide the Personal Data and if so the possible consequences of failure to provide such data.	YES	YES