Anaphylaxis UK statement in response to the Fundraising Regulator’s report

Anaphylaxis UK (formerly The Anaphylaxis Campaign) acknowledges the findings of the Fundraising Regulator’s report and welcomes the opportunity to further strengthen communication and compliance across our fundraising activity.

While the report identifies areas for improvement, it is important to note that the issues raised relate to a specific and historical case from 2018, which occurred prior to significant internal changes within the organisation. Nevertheless, Anaphylaxis UK is a learning organisation, and we welcome guidance that helps us continuously improve the services we provide to our beneficiaries.

Since that time, we have strengthened our oversight procedures and renewed our focus on ethical, transparent fundraising that aligns with both the Code of Fundraising Practice and our organisational values. We have enhanced fundraising guidance for volunteers raising funds on our behalf and improved our communication to ensure clarity, particularly at times when donors may be experiencing heightened emotional vulnerability. We have also strengthened our record-keeping processes relating to decisions on the use of funds.

In line with the Fundraising Regulator’s recommendations, Anaphylaxis UK has implemented a number of improvements, including:

• enhanced staff training focused on ethical fundraising and donor safeguarding.
• clearer and more accessible fundraising and donation information on our website, in line with the Fundraising Code.
• improved documentation to ensure robust recording of meetings and decisions relating to the use of donations.
• a review of accumulated funds supporting young people through programmes such as AllergyWise® for schools, our psychology service with the University of Surrey, youth ambassador podcasts, curriculum resources, and allergy training for schools
• increased use of social media to engage younger audiences on allergy awareness and management.
• a shared commitment to supporting young people through direct engagement with the complainant.

Anaphylaxis UK remains committed to operating with integrity, transparency, and openness. Our primary focus continues to be creating a safer environment for people at risk of severe allergic reactions by providing trusted information, support, training, and advocacy. Through education for individuals, families, schools, and the food industry, we aim to reduce the burden of allergies and improve quality of life.

For enquiries, please contact press@anaphylaxis.org.uk.